So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. I underwent a thyroidectomy and extensive bilateral neck dissection two years ago. Figured I'd chime in with my own experience, since everytime I see posts it sounds like a thyroidectomy is the worst thing in the world and its better just to live with thyroid cancer. Because I had such an intense spread, my surgical experience was a bit different than others. My throat feels full and I still feel "gaggy" from time to time. Im a pinch over 2 years post thyroidectomy for what turned out to be a couple small areas of PTC. It is important for endocrinologists and thyroid surgeons to be aware of this uncommon complication to reduce the risk for this facial disfigurement during surgery. They placed an IV line and took some blood samples. For me, this was the only appointment at which anyone even discussed paying up front for services. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. As days pass, I feel that this might not be a good decision. The quiet house has really helped me get better quickly. 3) I have a throbbing pain radiating from neck. I used regular tylenol only immediately following surgery and upon returning home. Life After Thyroid Surgery - Medtronic Mine is Synthroid and it really is noticeably better. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. PDF Thyroidectomy/ Parathyroidectomy Post-Operative Instructions For those that are getting ready to have this surgery I would never say "don't be scared," I would just say let the fear come like you are going skydiving and know that it will be over soon and things will start getting much better. I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). doi: 10.1097/MD.0000000000018309. J Minim Access Surg. When I first started this journey I read that thyroid cancer is a good cancer to have and I told my family this to ease their fears (and mine). 6) Went hypo for 6 weeks (didn't even understand what that meant until I physically got to experience it), fought to get RAI pushed earlier when TSH hit 97.99 and I had constant migraines, and no one ever mentioned LID (but I believe that didn't end up being so bad - as I did LID anyway after reading online 5 days prior and before that I was low enough naturally). Post Operative Expectations. A postoperative neck ultrasound conducted in the clinic did not show any suspicious nodes, masses, hematoma or collection that could potentially compress the sympathetic trunk. The nurse said, how was that. Complementary and alternative therapies for back pain II. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). The moment was really intense, as I didn't have a clue what to expect over the next several hours. I was diagnosed about a year ago after my dentist noticed the side of my neck was a bit raised. Now that I have my Vestibular training times setup I hopefully will be able to schedule Physical therapy for my knees without conflicts. I have always preferred water at room temperature. However, that information will still be included in details such as numbers of replies. A month later I had a TT and my tonsils out due to a chronic sore throat. Some of it was while I was still sore and using pain meds. I was also very coherent and cognitively feeling much better. I resumed my mental health appointments with Dr E. on the 24th of May. Which on one hand I'm annoyed, but on other hand - if its cancerous GET IT OUT. I was sent to the ICU (I knew I would be going there) because the surgeon wanted me to have better nurse ratios overnight. After surgery, you can expect some pain as your body heals. Once they do this will it be possible to do strenuous exercise (Boxing / Sprinting etc ) or could that affect my heart? I also feel much more anxious and depressed. I have felt 100% on my medicine (and I've been all over the TSH scale). On April 19th I started on the low iodine diet and stopped taking Cytomel in preparation for Radioactive Iodine treatment. I remember getting onto the operating table and the anesthesiologist telling me that she was starting anesthesia. Your neck is likely to be swollen and may feel hard and numb right after the surgery. Also put me on the We fit balance game and I completed it on the 3rd try. Getting up and moving was huge - really helped shake off the remaining cobwebs from the anesthesia. Clipboard, Search History, and several other advanced features are temporarily unavailable. Days to Celebrate Ask questions on here. disability; neck pain; neck stretching exercises; thyroidectomy. It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. The day of surgery I was scheduled for 2pm arrival and a 4pm surgery as an outpatient. 2 days for thyrogen shots then one day for RAI. As his caregiver I am feeling so helpless. What to Expect After Thyroid Surgery | University of Maryland Medical and transmitted securely. She was initially seen at an outside hospital where she was found to have a nodule in the left thyroid lobe and a metastatic node in the lateral neck, left level II. When, my partner got there, I asked him to get me a towel (it's amazing how much more I'll ask for through someone else rather than on my own I don't know if I'm the only one that way) and to wipe my back off. One less medical appointment set to have to worry about Karen & Dennis. Now, it was time to take my dinner pills. The result of the biopsy concluded Papillary Carcinoma. July 26th Another mental health appointment, another good visit he is defiantly happy with how I am doing and we are figuring out that I probably dont need too many more appointments for now at least. mcg of synthyroid. The hospital said I could return to work after 2 days of isolation but my doc said 7 days ( I work with kids and have 2 kids). Not sure what my TSH read at those doses, but I see my oncologist in a few weeks and am requesting a copy of my medical records should be able to figure out what my levels were with each by comparing them to the dates of prescriptions. He switched my meds from levothyroxin to synthroid and I noticed a big difference the first day! Sounded perfectly reasonable to me. For starters I only discovered what an endocrinologist or Thyroid even was like 8 weeks ago. Chronic postoperative pain exists in varying degrees for every type of surgery. get a second opinion if you are not satisfied with the care you are getting. I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. Pretty much the only physical limitations I have are I wouldn't even think about driving for a while, as I can't really look over my shoulder and I sort of walk like Frankenstein or as I like to put it one of my 4 year old's favorite "well-loved" stuffed animals that has his neck sewn on (I sort of do too)! The Effectiveness of Neck Stretching Exercises Following Total - PubMed This was my 2nd bout of hiccups from surgery again they lasted about 10 days. I can turn my head side to side and rotate them with some discomfort, but I feel the discomfort fading gradually. My Endo says I still "have" cancer (I wanted to clarify) not sure when that Dx will go away but I've read 5 years (is this true?). I was set up with an appointment the Friday before my Tuesday surgery to meet with the hospital for pre-op which included the anesthesiology department physician's assistant, blood work, a urine sample, a chest x-ray, height, weight, EKG and maybe a few test I'm not remembering right now. The usefulness of rehabilitation (i.e., a stretching exercise) for reducing these symptoms after surgery has never been studie After about a week or so, the pain was intermittent. I knew something was wrong last June 2014 talked to my doc about a strange pain in my neck. After hours emergency: A/Professor Miller's mobile - emergency only please. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. This is my biggest problem at the moment, not being able to work out is making me sit here and lose my mind. We called our local ent (who did the thyroidectomy in 2013) he was out of the office & since the ENT who did the most recent surgery of his lymph nodes is in Cleveland ( 3 hour drive for us ) so I took him over the the emergency room. 4) Went through with Surgery on July 29th, was a mess I guess as right lobe fused to esophogus and wrapped around windpipe areas. Find other members in this community to connect with. Neck swelling after thyroidectomy: not always a haematoma She reported left upper lid drooping and showed a recent picture with only the right side of her face flushed in a hot summer day (Figure 1, upper panel). So, I turned to look at my partner and to make sure he was OK. October 25th had my first Vestibular training they had me bring S. incase the therapy makes me too dizzy to be able to drive. I woke up with full back and neck in spasm do to previous athletic neck and back injuries. I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. National Library of Medicine ; Hemithyroidectomy or thyroid lobectomy: This involves the removal of one of the two lobes of the thyroid gland. I called the Mayo Clinic (all three branches MN, AZ and FL), the University at Loma Linda California, UC San Diego, UCLA, UC Irvine, The University of Miami, Baptist Hospital Miami, Jackson Memorial Hospital Miami, The Texas Institute of Thyroid and Para Thyroid Surgery (Dr. Kuppersmith) and am sure a few more that escape me right now. Background: 5) Biopsy report came back showing 2cm+ Papillary - w/ follicular variant, and Lymphocascular invasion, but completely contained in Thyroid. I don't remember exactly when he left. government site. I am defiantly feeling much more mentally stable after I was put on Synthroid. Get the latest news and education delivered to your inbox, Receive an email when new articles are posted on, Please provide your email address to receive an email when new articles are posted on. I'm still a horse. They said they caught it early though and think they were both stage one cancers. He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. Surgery took 6.5 hours and everything went well. Also, they put on my legs those devices that squeeze your legs to prevent blood clots, they said they'd hook them up in the OR. sharing sensitive information, make sure youre on a federal Side effects of thyroid surgery are common and include neck pain, a sore throat, difficulty swallowing, hoarseness, and temporary hypoparathyroidism that usually resolves within a few weeks. I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. You can relieve the discomfort using non-steroidal pain medication like ibuprofen. Keep a log of questions. This site needs JavaScript to work properly. 2 weeks ago I was sent to yet another doctor, an endocronologist. My salvitory glands swelled up a bit and were sore the first day, my sense of taste just minorly changed and was a little fatigued/headachy for a couple days. He has started scheduling me with weekly appointments. Gen A, elik SU, Gen V, Gkmen D, Tur BS. The problems I have had with the radiation therapy metallic salty taste in mouth and constant dry mouth. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. Would you like email updates of new search results? A new nurse was on duty at that point and she pointed out that thicker things were easier to swallow than thinner things. It is found in the front lower part of your neck. I did. On May 14th I went back to Madigan for follow-up CT scans. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. I had a total thyroidectomy last week. I've always had the pain when coughing hard. The effects of cervical kinesiotaping on neck pain, range of motion, and disability in patients following thyroidectomy: a randomized, double-blind, sham-controlled clinical trial. A later CT scan also showed some suspicious pulmonary nodules in the lungs. Call our office at 410-328-6187. On October 4th I had my first appointment with Su., the nutritionist, and she told me that looking at what lab results were in the system that my calcium, magnesium and potassium are all low. I don't know why it seems that everyone naturally goes hypo, that seems like an awful process instead of getting two symptomless thyrogen shots. As a complete aside, that bair paws gown they'd put me under was starting to heat up like turkey in a browning bag. "Neck pain and discomfort scale" and "Patient and Observer Scar Rating Scale" were applied again in both phone calls. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). After getting checked into the radiation isolation room #625, they brought me my dose of radiation 175 mCi of I-131 t1/2= 8 days. She was treated with 100 mCi of radioiodine-131 and currently has an excellent response to therapy. Was able to do up and down 3 times each leg. The combination with of nortriptyline 10 mg per day and . Now, the scar. They brought him back to see me in pre-op again. The doctor says it might not ever be the same. At last a surgeon came in and had me sign the forms. I remember my throat hurting pretty badly. Typically thyroidectomies take about 3hours and you come out with a cute little 3in scar. 3 Sep had an appointment with my primary care doctor for setting up appointment for my right knee and more ear drops for the infection. Hello, Neck stretching exercises done immediately after a total thyroidectomy reduce short-term neck pain and disability symptoms. 8) Waiting on TG and TGant tests Monday, but surgeon wants to biopsy the 1.5 cm lymphnode and open me up this week and remove if cancerous. This close anatomical relationship with the thyroid makes the sympathetic trunk and the middle cervical ganglion vulnerable during thyroidectomy, especially when performed with a central neck dissection for metastatic nodes. #1. Through the night I got up to use the bathroom. Some nurses came and took my vitals and repeatedly asked me a lot of questions, including what type of surgery I was having and my date of birth. Complications associated are still common and 80% of patients complain of posterior neck pain. I really haven't had pain since mid-lsat week. The patient underwent total thyroidectomy with central and left lateral neck dissection. Again, my surgeon only says it's normal with minimal to no explanation whatsoever. Hi! Exercise therapy for office workers with nonspecific neck pain: a systematic review. I really needed people telling me what was going on. 2010 Oct;(194):1-764. Do to how well the first surgery I was not expecting any problems although I am always nervous about surgery. I met with two different surgeons. But, I wasn't really all that coherent, so I asked if I could have some water (remember, nothing to eat or drink from midnight the night before so, I'm getting on 23 hours without food or drink) CRUSHED GLASS IN ACID MIXED WITH GRAVEL couldn't have felt that horrible. I have experienced significant hairfall, slight acne and irreparable dry skin. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. She kind of blew me off although she did do a thyroid TSH test and it was "normal". I also gained 30lbs last summer. I had my TT exactly 2 weeks ago. Thyroid Surgery Process - Penn Medicine Crepey skin on neck after thyroidectomy: Will it go away on it's own? Jul 30, 2016 10:05 AM. 2005 Jun;29(6):775-9. doi: 10.1007/s00268-005-7722-3. Suffice to say, I was a total and complete mess. Difficulty swallowing. My only regret at that point is that I didn't ask for ativan or xanax or something to calm my nerves it could have been given IV. On March 8th I had a full eye check and they gave me a new prescription for glasses along with noting that I should have more frequent eye checks (6 months a year) do to the fact that thyroid issues can cause vision changes. i am at my wit's end with all of this pain after my thyroidectomy last Nothing too bad though, and apparently I had the biggest dose you can give without being hospitalized, so most people will be getting less. Numb feeling on the front side of my neck between my chin and incision. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. Facial and Jaw pain - Thyroid cancer - Inspire Complications are much less common and can include neck bleeding, permanent hypoparathyroidism that requires ongoing calcium replacement, and damage to . We present a case of a patient who returned with a neck swelling 6 days following thyroidectomy and central neck compartment lymphadenectomy for suspected thyroid carcinoma. A randomized controlled trial was conducted. The only problem I had with the surgery was hiccups that lasted about 10 days, I was told this was due to the tube they put down your throat during anesthesia. After 7 days I went for my body scan. Do others work out as soon as possible? When I arrived I caught up with my family who brought the things i needed (PLEASE buy a nice neck pillow, I got a memory foam one from Amazon and it was a comfort saver) and even laughed a bit. None for cancer, but enough to make me a believer in getting a second opinion. The pain is in the natural curve of my neck, about 2-3 inches above the incision. Could be in the supermarket or at KFC, I have no idea. She was clinically and biochemically euthyroid without any compressive symptoms. Two weeks ago I wrote a post about my extreme anxiety preparing for a total thyroidectomy and central neck dissection. I'm dizzy like I'm drunk and nauseated. I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. On the 4th of May 2010 I was back at Madigan for a radiation count on my thyroid followed by my second uptake dose of radiation (RI-123 UPTAKE) 2.8 mCi I-123 t1/2= 13.2 hours I've been on levothyroxine and calcium supplements since I was in the hospital and report no adverse reactions to any of that (fingers crossed on the thyroid medication continuing to be smooth for the most part once all my remaining natural hormone is gone). My first endocrinologist was awful to deal with so I switched to seeing my current endocrinologist, who is ok but a hour and a half drive and she recently reduced her clinic hours to just on friday which doesnt work with my work schedule. I took all my own sheets, towels and wore gloves the first two days. Tender neck : After surgery, it is natural for a patient to minimize . So hopefully this helps calm down some of you starting to go through this process because its not all bad experiences (and this is coming from someone who has had their cancer spread described as "Chernobyl-like"). I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. The .gov means its official. He said he wanted to get my RAI done - he likes to do it within 3 months of surgery and thought it had been enough time since ct. Double check with your insurance even if your dr and hospital say you're covered. I felt bad the first two days but that was it. I know this is long but if you are new to this, maybe hearing my story will be helpful. Due to this, I strugelled for over 2 weeks with swallowing. I was told I had a goiter and it could be cancer so I needed to get to my primary dr asap. Results. She felt my neck and again felt nothing and sent me on my way. The surgical pathology reported a 5 cm papillary thyroid cancer in the left lobe of the thyroid with lymphovascular invasion, microscopic positive surgical margins, with five of 59 positive lymph nodes (two left level IIA nodes, one Delphian node and two level VI nodes). I was also finally getting the follow-ups setup so they could deal with my loss of hearing (Stapendectomy) so I managed to get an appointment with the ENT Clinic. Given that I had what my doctor (the top thyroid surgeon in the region who does hundreds of surgeries a year) said was the biggest surgery he had done all year, my recovery was much worse than what most peoples should be. So he sent me for Thyroid level tests and a Thyroid ultrasound. I saw the bandage over the scar for the first time and was really surprised at how small it was. Next for me is probably clinical trials for this lung stuff + more lymph node removal down the line since those are growing back, but for 95% of you that's not something you'll be having to deal with:) But basically my point in all this is that it doesn't have to be as scary as it's sometimes made out to be. Within half an hour I was being wheeled to the elevator to head down to the first floor. 30 Nov 2011 Official Retirement from Navy. However, such measures have not been evaluated by randomized controlled trial . Also I had a follow up with my mental health provider. Hi! The site is secure. How to Take Care of an Incision After Thyroid Surgery Regarding the pain levels and my voice. I called the office to verify that was correct and was told it was. Can it grow that fast from elevated TSH levels?
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